This is sad, infuriating, tragic and frustrating. I came across "Jake" (a nickname) about 6 years ago on YouTube searching for information on MCAS. The reason being, about 99% of all doctors being complete and total arrogant egotistical indoctrinated (versus educated) morons, trying to get information about this disease was nearly impossible, for me and millions of others. So not unlike Jake, I and others have to do our own research, figure out our own diagnosis, figure out possible treatments, medications that might potentially work, figure out blood and urine tests, then go back to our "doctors", pay them exorbitant amounts of money, to get said tests and meds, arguing with the jackasses, then proving them wrong, again and again and again and again and again and again...with the hopes of getting better. Years down the road, totally bankrupted by these megalomaniac, vapid, vacuous, incompetent simpletons, with broken spirits and souls, having been misdiagnosed for years or decades, some of us get better and some can no longer fight them...and succumb to the fatigue, pain and suffering and end their own lives, like Jake did...she was only 30 years old.
Below are some screen shots of interactions between Jake and myself from her YouTube channel...trying to entertain, amuse, educate, enlighten and support each other...just like she did with innumerable others, just like all of us do, in spite of the lack of support from the "medical establishment" overall, who is still mostly as clueless today about this disease, as they are about numerous other ones. She truly helped me in so many ways, as she did with others, and I feel so, so, so sorry for her mother, her little dog Piper (whom I called Cujo) and her family.
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